ENGLISH
About the JEMA
The Japan Endometriosis Association (JEMA) was founded in Osaka , Japan
in 1994 by Masumi Inui, who has been Representative since its creation,
and colleagues.
JEMA is a non-profit organization dedicated to educating, supporting and
advocating for women with endometriosis.
We collaborate with women with endometriosis, health professionals, medical
corporations, health governmental organizations, various NPO's, endometriosis
support groups around the world, and mass medias.
We advocate and achieve many goals on behalf of wellbeing for women with
endometriosis at the national levels.
Abolishing membership dues at the end of 2003, we are supported by donations
(contributors are called "supporter").
The number of supporters are about 1000.
Our Mission
The Japan Endometriosis Association (JEMA) is a national organization dedicated
to supporting women with endometriosis and questing women’s health for
women's lifelong wellness (especially endometriosis).
Our Main Purpose
- JEMA provides a wide range of services designed to help people gather information
on medical treatments, other options, tips for coping with disease, legal
and insurance issues, and other endometriosis concerns.
- JEMA supports self-help of women with endometriosis.
- JEMA educates the public (including health professionals and families)
about endometriosis, and the JEMA's services focus on increasing awareness
of the medical and social issues around endometriosis.
- JEMA aims to quest women's health for women's lifelong wellness ( especially
endometriosis ).
Office and Staff
Masumi INUI, Executive Representative
And two administrative staff, and several volunteer staff.
Location: 1-20-2-301, Nippombashi, Chuo-ku, Osaka-City, OSAKA 542-0073
Call/facsimile: 81-6-6647-1506
Activities
support
- WEB Site
a) Accurate, useful information on diseases and therapies
b) Message Boards (for supporters and ectopic endometriosis)
c) Mail magazine
- Medical advise by phone
- Books: "Endometriosis Book Guards You" written by Masumi Inui
Health Improvement Activities
- To bring the standard global medical treatment to Japan
(Promotion of low-dose pill / Correction of GnRH agonists abuse / Promotion
of a laparoscopy, etc.)
- Worldwide lectures, speeches, press releases, etc．in medical societies
and affiliated meetings.
- Negotiate and collaborate with MHLW and medical corporations.
- Exchange and utilize information with mass medias.
- Share and correct information about endometriosis on Internet.
- Collaborate with endometriosis support groups worldwide, affliated group
and other NPOs.
National Endometriosis Survey
- JEMA 1996 Patients Fact Data 703 available out of 1100 patients 41 prefectures
- JEMA 2001 Patients Fact Data 1073 available out of 2200 patients 46 prefectures
- JEMA 2006 Patients Fact Data 668 available out of 1577 patients all prefectures
JEMA's Recent Activities and Events
- One of our most important activities is improving medical treatment so
that we can keep up with the US & European countries
-The promotion of low-dosage contraceptive pill therapy ( with correction
of GnRHa abuse)
＊Since 1996, we have participated in five related medical conferences to
speech ,discuss and hand out report, etc.
Since the beginning of the 21st century, among other projects supported
by us are educating even MDs specializing in endometriosis the effectiveness
of pill treatment, and informing patients or society these options by our
newsletter or website.
＊Low-dose pills were not approved until September 1999 in Japan.
GnRHa was used repeatedly (2-3 times those of US/EU).
And we have negotiated with MHLW for introduction of contraceptive pill
in collaboration with various women's organizations and female Diet members.
＊After September 1999, the use of pills have not spread because MDs hesitated
to prescribe pills without insurance coverage, and with lack of knowledge
and experiences they even did not recommend to patients.
And so in the autumn of 2002, we undertook project for applying the health
insurance coverage with endometriosis.
＊At the end of 2002, we made the first following written request to MHLW:
supplemental NDA to low-dose pills,introduction of new pills, GnRHa abuse
correction.
＊Since 2003, we have been in full cooperation with Nobelpharma Co.,Ltd's
clinical development of Ortho M for endometriosis.
The product was submitted to MHLW for approval in October 2006.
＊At the same time, Nihon Schering KK (a subsidiary of Schering AG) have
started to develop YAZ, the super-low-dosage contraceptive pill for dysmenorrhea
in Japan.
They are working on Phase 3 study.
＊In March 7th of 2005, we made the second written request to MHLW, as world
cooperation awareness in March.
We discussed with MHLW staff, and petitioned to a female Diet member of
Democratic Party .(her remarks are effectively made in Parliament the following
month).
＊In March 7th of 2006, we made the 3rd written request to MHLW and discussed
with
. Also we uploaded the ESHRE Endometriosis Guideline - Japanese translation
on our website.
＊In October 2006, we made the 4th written request to MHLW and discussed
with.
＊At the start of February 2007,the modified ESHRE Endometriosis Guideline
- Japanese translation was uploaded on our website.
＊ In March 1st of 2007, we made the 5th written request to MHLW and discussed
with.
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